Ακούστε για το θαύμα του Θοδωρή στη ⚽️Μπάλα που κυλάει χόρτο δεν μαζεύει στο Amagi Radio
Ο πατεράς του Θοδωρή, Χρήστος, μιλάει στον Μάκη Διόγο για το Θαύμα του Θοδωρή και την νόσο Batten
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- BDSRA Memorial Names July 2, 2019The Batten disease community is one of support and strength, and we know that remembering loved ones is so important to you and your family. If you would like to have a name added to the Batten Disease Memorial, or update any information please click here to complete the form. All information must be submitted […]tkirby
- June issue of the Illuminator newsletter June 21, 2019The newsletter is here! Click here to read the latest issue. (Read More) The post June issue of the Illuminator newsletter appeared first on Batten Disease Support & Research Association.tkirby
- BDSRA Virtual 5K May 17, 2019June 9th is International Batten Disease Awareness Day! Our goal is to honor and support those affected by Batten disease and raise awareness. Join us as we celebrate families around the world and raise money for research! BDSRA is hosting the 2019 International Batten Disease Awareness Day Virtual 5K on June 9th, […]tkirby