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Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

Say a Fable to Raise Awareness for Batten Disease

RSS Updates from the Batten Community

  • BDSRA Store Purchase Fulfillment Delayed March 27, 2020
    BDSRA will continue accepting BDSRA Store orders but due to social distancing fulfillment of these orders will be delayed. Thank you for your understanding. (Read More) The post BDSRA Store Purchase Fulfillment Delayed appeared first on Batten Disease Support & Research Association.
    Noreen Murphy
  • The latest issue of the newsletter is now available October 29, 2019
    The latest issue of the Illuminator is here. Click here to read about Rare Disease Week, Global Genes, Trnds Symposium and more. (Read More) The post The latest issue of the newsletter is now available appeared first on Batten Disease Support & Research Association.
    tkirby
  • The latest issue of the newsletter is here! September 4, 2019
    Click here to read the latest issue of the newsletter, including science updates from the family conference. (Read More) The post The latest issue of the newsletter is here! appeared first on Batten Disease Support & Research Association.
    tkirby

Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

RSS Updates from the Batten Community

  • Cancellation of AGM on 25th April 2020 March 18, 2020
    Cancellation of AGM on 25th April 2020 Dear all, It is with great regret that we, the BDFA, have had to make the disappointing decision to cancel our AGM in April. We hope that you understand, in line with organisations…
    BDFA
  • The LSD collaborative and partners Webinar about Covid-19 March 18, 2020
    The LSD collaborative and partners have organised a Webinar about Covid-19 and all families are invited to attend. Monday 23rd March, 11-12pm Questions need to be submitted in advance. We understand it’s an incredibly stressful time for you all. Please…
    BDFA
  • BDFA AGM News! February 4, 2020
    Notice of Annual General Meeting of the Batten Disease Family Association NOTICE IS HEREBY GIVEN that the Annual General Meeting of the Batten Disease Family Association will be held on Saturday 25th April 2020 12pm in the Davies Room The…
    BDFA

Theodore's Miracle