Theodore and friends blog

Batten Disease

Theodore and friends blog

By  / December 16, 2018

Η νόσος Μπάτεν και το θαύμα του Θοδωρή ως παράδειγμα για όλους μας

Ο Θοδωρής Ντούμας είναι σήμερα 23 ετών ενώ στα έξι του χρόνια διαγνώστηκε με τη θανατηφόρα νόσο Μπάτεν. Κόντρα στις...

Read More
By  / March 10, 2018

Rare Without Borders: Interview with a Greek Family Battling Batten Disease

APRIL 10, 2017 RDR Staff Rare Disease Report had the privilege of interviewing one of our followers, Christina Bouraimi living...

Read More
By  / March 9, 2018

Former British Prime Minister Talks About His Son, Ohtahara Syndrome, and the 100,000 Genome Project

At the 2017 BIO International Convention in San Diego, CA, former British Prime Minister David Cameron revealed that Britain’s 100,000 Genomes Project...

Read More
By  / March 9, 2018

Face to face: A Fairy-tale

Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures...

Read More