Theodore’s Miracle Wristbands
Get your Theodore’s Miracle wristband, to spread awareness for Batten Disease and support Theodore to keep his Miracle alive!
For more information on how to get a Theodore’s Miracle wristband please email us to theodoresmiracle@gmail.com or message us to Theodore’s Miracle Facebook page by following this link: https://www.facebook.com/theodoresmiracle/
Let’s be stronger together at the fight against Batten Disease!
Thank you all for your support.
Theodore and his Family
- BDSRA Board of Directors November 20, 2018Brock Benroth is a small business owner, and the married father to two daughters: Kate, who had CLN2 and is a Batten angel and her older sister Lauren, who is a carrier. He has joined the board because through his family’s journey with Kate, her participation in a clinical trial, his experience as the Ohio […]tkirby
- BDSRA Executive Director October 18, 2018BDSRA is currently accepting applications for the position of Executive Director. Founded in 1987, our long-term vision is a world without Batten disease. Our mission is to support Batten families, fund and facilitate research for treatment and a cure, and advocate for action. Please click here for more information and to apply. (Read More) The […]tkirby
- Emerging Research Conference Travel Award Winners October 18, 2018From left to right: Dr. Dearborn, Dr. Dang Do, Dr. Dean, Dr. Nelvagal An Ngoc Dang Do, MD PhD NICHD, NIH For many young investigators of rare diseases, having the opportunities to present the research and to discuss in-person ideas for partnerships with other researchers, families and organizations are crucial. This encourages continued commitment and […]Noreen Murphy