Theodore’s Miracle Wristbands |

Theodore’s Miracle Wristbands

Get your Theodore’s Miracle wristband, to spread awareness for Batten Disease and support Theodore to keep his Miracle alive!

For more information on how to get a Theodore’s Miracle wristband please email us to theodoresmiracle@gmail.com or message us to Theodore’s Miracle Facebook page by following this link: https://www.facebook.com/theodoresmiracle/

Let’s be stronger together at the fight against Batten Disease!

Thank you all for your support.

Theodore and his Family

September Illuminator is here! October 9, 2020
Click here to see the Illuminator! The post September Illuminator is here! appeared first on Batten Disease Support & Research Association.
Noreen Murphy
July Illuminator Newsletter is Here! October 8, 2020
Check out the July Newsletter! Read all about the 2020 Virtual BDSRA Conference and upcoming research opportunities. View is here, https://conta.cc/3gkQqnb. The post July Illuminator Newsletter is Here! appeared first on Batten Disease Support & Research Association.
Noreen Murphy
August Illuminator Newsletter is here! October 8, 2020
The August Newsletter is here! Learn about new advocacy opportunities with BDSRA, clinical research updates, and more! You can view the newsletter here: https://conta.cc/2YRNVSH The post August Illuminator Newsletter is here! appeared first on Batten Disease Support & Research Association.
Noreen Murphy

Updates from the Batten Community

New Head of Fundraising, welcome Liz Brownnutt January 18, 2021

The BDFA team is delighted to announce that Liz Brownnutt, our new Head of Fundraising starts today. This is a key appointment as the charity moves to diversity its income and build a sustainable future, offering the very best we…

BDFA

Untitled December 21, 2020

We wanted to wish everyone in the Batten community a very Merry Christmas and a Happy New Year! Our office is closed from tomorrow, Tuesday 22nd Dec till Monday 4th January. Sending you all Christmas wishes, The BDFA Team Amanda,…

BDFA

The Amber Trust launches major new music service, With Music In Mind in association with the Amber Trust November 6, 2020

With Music in Mind by Amber Trust Monday 16 November 4-5pm With Music in Mind is The Amber Trust’s pioneering new music service for families who have a visually impaired child with neurodegenerative disease, such as Batten disease. This webinar…

BDFA

Theodore’s Miracle Wristbands