- BDSRA Hires New Executive Director April 16, 2019Dear BDSRA Community, It is my pleasure to announce that Tauna Batiste will be joining our BDSRA team as Executive Director on May 20, 2019. Tauna is a skilled nonprofit professional who has been committed to community service from an early age. She joins the BDSRA with over 20 years of professional experience in nonprofit […]tkirby
- BDSRA Board of Directors November 20, 2018Brock Benroth is a small business owner, and the married father to two daughters: Kate, who had CLN2 and is a Batten angel and her older sister Lauren, who is a carrier. He has joined the board because through his family’s journey with Kate, her participation in a clinical trial, his experience as the Ohio […]tkirby
- BDSRA Executive Director October 18, 2018BDSRA is currently accepting applications for the position of Executive Director. Founded in 1987, our long-term vision is a world without Batten disease. Our mission is to support Batten families, fund and facilitate research for treatment and a cure, and advocate for action. Please click here for more information and to apply. (Read More) The […]tkirby