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Latest News

Say a Fable to Raise Awareness for Batten Disease

RSS Updates from the Batten Community

  • BDSRA Releases the 2019-2020 Impact Report September 10, 2021
              September 2021   Dear Batten Community, We are pleased to present to you the BDSRA 2019-2020 Impact Report. Although 2019 seemed like a vague memory and 2020 seemed to stand still, we invite you to turn back the clock in your mind, as we did, to see a glimpse of […]
    Morgan Deboth
  • Your August Newsletter is Here! September 1, 2021
    Click here to view the August 2021 edition of the Illuminator. The post Your August Newsletter is Here! appeared first on Batten Disease Support & Research Association.
    Audrey Albright
  • Your July Newsletter is here! July 31, 2021
    Click here to access the July 2021 Edition of the Illuminator. The post Your July Newsletter is here! appeared first on Batten Disease Support & Research Association.
    Audrey Albright

Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

RSS Updates from the Batten Community

  • Welcome to Sian Fisher, Head of Family Support September 10, 2021
    The BDFA is delighted to announce the appointment of Sian Fisher as the charity’s new head of Family Support and Advocacy.Sian will be responsible for all aspects of support and will be tasked with developing our support and advocacy services…
    BDFA
  • New office September 7, 2021
    We have moved!!! Yesterday we got the keys to the new lovely BDFA office near Kings Cross in London. It needs a little organising to make it feel like home but we are all really excited!
    BDFA
  • BDFA office is moving to a new home September 3, 2021
    We are so excited to annouce that the BDFA will have a new home as of Monday 6th September just a short walk from Kings Cross station in London. Boxes are packed and ready to go, and we can’t wait!…
    BDFA

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Theodore's Miracle