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Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

Say a Fable to Raise Awareness for Batten Disease

RSS Updates from the Batten Community

  • The latest issue of the newsletter is now available October 29, 2019
    The latest issue of the Illuminator is here. Click here to read about Rare Disease Week, Global Genes, Trnds Symposium and more. (Read More) The post The latest issue of the newsletter is now available appeared first on Batten Disease Support & Research Association.
    tkirby
  • The latest issue of the newsletter is here! September 4, 2019
    Click here to read the latest issue of the newsletter, including science updates from the family conference. (Read More) The post The latest issue of the newsletter is here! appeared first on Batten Disease Support & Research Association.
    tkirby
  • July Issue of the Illuminator August 9, 2019
    Click here to read the latest issue of the newsletter (Read More) The post July Issue of the Illuminator appeared first on Batten Disease Support & Research Association.
    tkirby

Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

RSS Updates from the Batten Community

  • BDFA AGM News! February 4, 2020
    Notice of Annual General Meeting of the Batten Disease Family Association NOTICE IS HEREBY GIVEN that the Annual General Meeting of the Batten Disease Family Association will be held on Saturday 25th April 2020 12pm in the Davies Room The…
    BDFA
  • CEO Announcement January 29, 2020
    BDFA CEO APPOINTMENT The Board of Trustees of the BDFA is very pleased to announce the appointment of Amanda Mortensen as the BDFA’s new Chief Executive. As many of you know, Amanda has served as a trustee and then as…
    BDFA
  • Christmas break December 20, 2019
    The BDFA office will be closed from 23 Dec returning on 6 Jan 2020 for the Christmas break. Thank you for all your support over the past year, it is very much appreciated. Everyone at the BDFA wishes you a…
    BDFA

Theodore's Miracle