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News

Theodore in the News

Rare Without Borders: Interview with a Greek Family Battling Batten Disease

Rare Disease Report had the privilege of interviewing one of our followers, Christina Bouraimi living in Greece, about her son’s...
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Theodore in the News

Theodore’s Brother, Vasilis, and Nick Maroulis, discuss, with Janet Demeter, on Childhood Cancer Talk Radio

Nurse and family confidante Nick Maroulis, and brother of Theodore Vasilis Ntoumas join us to discuss Batten disease and the...
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Theodore in the News

Face to face: A Fairy-tale

Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures...
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