Η νόσος Μπάτεν και το θαύμα του Θοδωρή ως παράδειγμα για όλους μας
Ο Θοδωρής Ντούμας είναι σήμερα 23 ετών ενώ στα έξι του χρόνια διαγνώστηκε με τη θανατηφόρα νόσο Μπάτεν. Κόντρα στις...
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Theodore and friends blog
Rare Without Borders: Interview with a Greek Family Battling Batten Disease
APRIL 10, 2017 RDR Staff Rare Disease Report had the privilege of interviewing one of our followers, Christina Bouraimi living...
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Former British Prime Minister Talks About His Son, Ohtahara Syndrome, and the 100,000 Genome Project
At the 2017 BIO International Convention in San Diego, CA, former British Prime Minister David Cameron revealed that Britain’s 100,000 Genomes Project...
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Face to face: A Fairy-tale
Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures...
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