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Batten Disease

Theodore’s Social Media Hub

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Latest News

Say a Fable to Raise Awareness for Batten Disease

RSS Updates from the Batten Community

  • We’re Hiring! January 24, 2022
      BDSRA is hiring! Considering joining BDSRA's dynamic team. We're looking for a Marketing & Public Relations Coordinator in our Columbus, OH office. Our mission is a world without Batten, and we're looking for someone to tell our families compelling stories.   To view the job post and to apply please visit LinkedIn here. You […]
    Morgan Deboth
  • Rare Community Urgent Call-To-Action January 5, 2022
    Urgent Call-To-Action: There is a pressing concern within Oregon that the Epilepsy Foundation and many others in the disability and chronic condition community are working on. Through a 1115 Demonstration waiver to the federal government (CMS, specifically), Oregon is considering changes to its Medicaid program that will have significant detrimental effects on people with [...] […]
    Audrey Albright
  • December 2021 Newsletter January 1, 2022
    Ring in the new year and see some the great things that happened in 2021 by reading our December Newsletter. Click here to read.  The post December 2021 Newsletter appeared first on Batten Disease Support & Research Association.
    Audrey Albright

Latest News

RSS Updates from the Batten Community

  • Join our team! The BDFA are looking for a Scientific Officer January 27, 2022
    Fancy working for the BDFA? The BDFA currently have an exciting job opening for a Scientific Officer to join the team. This is an opportunity for to join a national rare disease charity as our in house scientific ‘expert’ on…
    BDFA
  • BDFA Christmas charity single made it all the way to the no 1! January 6, 2022
    Well the Christmas charity single made it all the way to the no 1 position in the official UK physical singles charts!! Huge congratulations and thanks to our friend and supporter David McGovern for this amazing achievement. David has worked…
    BDFA
  • BDFA December 2021 newsletter is here! December 23, 2021
    Welcome to the BDFA newsletter December edition. The team has been working really hard to get the newsletters going again after a long break. We hope you enjoy the update. Wishing you all a Merry Christmas and a very happy…
    BDFA

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