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Theodore’s Social Media Hub

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Latest News

Say a Fable to Raise Awareness for Batten Disease

RSS Updates from the Batten Community

  • October Events: Click here! October 6, 2021
    Register or find more information on all October 2021 events important to our Batten Community below. Join us for Ask-An-Expert: Lab Edition on Tuesday, October 19th, 2021 at 5:00pm EST with Brandon Whipple, Director Surgical Research Center and Director Animal Research Center at Sanford Research. Lab Edition includes an [...] The post October Events: Click […]
    Audrey Albright
  • Your September 2021 Newsletter is Here! September 30, 2021
    To view the September edition of the Illuminator Newsletter, please click here.  The post Your September 2021 Newsletter is Here! appeared first on Batten Disease Support & Research Association.
    Audrey Albright
  • BDSRA Releases the 2019-2020 Impact Report September 10, 2021
              September 2021   Dear Batten Community, We are pleased to present to you the BDSRA 2019-2020 Impact Report. Although 2019 seemed like a vague memory and 2020 seemed to stand still, we invite you to turn back the clock in your mind, as we did, to see a glimpse of […]
    Morgan Deboth

Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

RSS Updates from the Batten Community

  • Join our team- Family Support Worker & Community Fundraiser October 22, 2021
    Fancy working for the BDFA? We currently have 2 job opportunities open to join our team. We are looking for a family support worker and a community fundraiser. Community Fundraiser Permanent, Part-time, 21 hours a week https://www.charityjob.co.uk/jobs/the-batten-disease-family-association/community-fundraiser/779545?tsId=2 Family Support Worker…
    BDFA
  • Pride of Batten Awards 2021 October 21, 2021
    We are pleased to announce an exciting new annual BDFA initiative, the Pride of Batten Awards This is your opportunity to highlight the very best practice across the UK. Who is going the extra mile for your family member with…
    BDFA
  • Join our team- Community Fundraiser October 13, 2021
    We are seeking an experienced Community Fundraising Officer to join the Fundraising Team at the BDFA. The BDFA is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects…
    BDFA

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Theodore's Miracle