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Latest News

Say a Fable to Raise Awareness for Batten Disease

RSS Updates from the Batten Community

  • Your July Newsletter is here! July 31, 2021
    Click here to access the July 2021 Edition of the Illuminator. The post Your July Newsletter is here! appeared first on Batten Disease Support & Research Association.
    Audrey Albright
  • 2021 Virtual Family Conference Schedule July 15, 2021
    Please see the official 2021 BDSRA Virtual Family Conference Program attached below: official conference website For more information, download the BDSRA App (available on iPhone and Android) or visit: www.bdsraconference.org. The post 2021 Virtual Family Conference Schedule appeared first on Batten Disease Support & Research Association.
    Audrey Albright
  • Your June Illuminator is here! June 30, 2021
    Your June Illuminator is here. The post Your June Illuminator is here! appeared first on Batten Disease Support & Research Association.
    Morgan Deboth

Theodore’s Miracle Newsletter

Subscribe to our monthly newsletter to get the latest news from Theodore's life and our efforts to Raise Awareness for Batten disease as well as the latest updates from Batten and Rare Disease communities.

Latest News

RSS Updates from the Batten Community

  • The BDFA Family Conference is back in 2022 August 3, 2021
    **** SAVE THE DATE **** The BDFA Family Conference is back in 2022! Saturday 11th- Sunday 12th June 2022 Due to current times, the BDFA are planning that this conference will be a hybrid event, so families can join us…
    BDFA
  • Epilepsy Masterclass- With Dr Ruth Williams July 27, 2021
    Join Dr Ruth Williams, Consultant Children’s Neurologist for a session on epilepsy and Batten disease. Monday 9th August @ 5pm, on Zoom Please RSVP to admin@bdfa-uk.org.uk for the link. Hope to see you there!
    BDFA
  • THANK YOU TO BDSRA ATTENDEES July 27, 2021
    Here at the BDFA we want to say a MASSIVE THANK YOU to all of our families in the UK who attended the BDSRA annual family conference this past weekend, and thank you to all the other families all over…
    BDFA

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